ROC Incorporated

2 months ago

Hi my name is Ally
1st February marks the first day of Ovarian Cancer Awareness month.

Ovarian cancer has rocked my family to it's core taking my favourite person in the whole wide world away from me due to this incideous disease. Sadly and devastatingly, ovarian cancer is found in its late stages. We need to change this outcome!
My beautiful mum fought this beast hard. She is a warrior the most courageous & strongest person I know and many like mum, battle this beast. Nothing will ease the pain or bring my mum back, but I will fight for change till my last breath in her honour and for all women.

The survival rate is still so low which is why we need more funding and awareness for more research in order to one day, find a test that finds ovarian cancer in its early stages, to help increase the survival rate and save lives of many women or the dream that one day...researchers find a cure.

#ROCinc to donate to research $2 donations are tax deductible or read more about this fantastic organisation and join FB page www.facebook.com/rareovariancancers
Get involved in painting a rock #ROCKforROC and hiding around the Illawarra or beyond to spread awareness (stickers to glue to back of rocks can be found on Facebook page).

Know the symptoms...know your body....any changes ...see your doctor
The symptoms are located in the beautiful ROCinc awareness wings.

Share this post and let's get the word out this month and beyond.

#ROCInc #ovariancancerawarenessmonth #ROCKforROC #rareovariancancer #FKCANCER www.facebook.com/rareovariancancers
Love you Mum. Xxx ... See MoreSee Less

ROC Incorporated is feeling emotional.

2 months ago

Hi Its Tash here sharing a post as today the 1st of February marks the start of ovarian cancer awareness month.
Five years ago, my daughter Mikayla had just turned 16 years old and was diagnosed with a rare ovarian cancer (ROC) called Juvenile Granulosa Cell Tumour (jGCT) that had previously received no research.
To be completely honest I had no knowledge about ovarian cancer nor any of its symptoms. It was a shock and has been a roller coaster ride ever since!
In reflection so much has happened in that time, I founded Rare Ovarian Cancer Incorporated (ROC Inc) which has an amazing team of volunteers that are working towards change including the Ride 4 Research Cycling Team. We initiated the world’s first research for jGCT with world leading researchers at the Hudson Institute of Medical Research in Melbourne, VIC. Was awarded a government MRFF grant for GCT research and this was the first time in Australian history jGCT received government funded research which I proudly say I have the rare honour to be a consumer Chief Investigator on the research team. The research team continue to amaze me with their dedication and research work as they push to find the answers we need.
But there is still so much that falls short…. You make ask why I say that and the below stats may help
In the early 2000s both breast cancer and ovarian cancer had the same 5-year survival rate: 47%.
In 2023, because of funding for research breast cancer has a survival rate of 92% and ovarian cancer
had only increased by 1%
In 23 years, ovarian cancer survival has only increased by 1% to 48%, in 2020 juvenile Granulosa Cell tumour received its first ever federal funding to start to find answers for a best outcome treatment option.
So yes, we are making steps but we need much more so there is a fair change of a bright and happy future for those who are diagnosed.
Facts show that dollars towards research equals a better survival rate so if you can donate, please do or buy an item from our merchandise. Share a post about ovarian cancer awareness, wear a teal ribbon throughout February, talk to family, friends and work colleagues about ovarian cancer, join Rock for roc and paint an awareness rock. Each of these things will impact change, a change in the survival of those #RockforROC
#OvarianCancerAwarenessn#teala#RareDisease #gctresearch #ResearchIsKeyR#OvarianCancerAwarenessMonthwarenessMonth ... See MoreSee Less