Rare Ovarian Cancer researchers and consumers work together to produce a research paper.

Congratulations to ALL of the authors, lead author Professor Victoria White from Deakin University, Professor Peter Fuller, Associate Professor Simon Chu, Maria Alexiadia, All from the Hudson Institute of Medical Research, Professor Thomas Jobling from Monash Health, Members from the GCT Survivor Sister Facebook Group our Founder and CEO of ROC Inc Natasha Armour (from Australia), Linda Langdale (from the UK), Sue Rogers, Kaye Ackermann and Kim Eroh (all from the USA), on having your research paper published in the journal Cancer – an international interdisciplinary journal of the American Cancer Society https://acsjournals.onlinelibrary.wiley.com/doi/10.1002/cncr.34767 You should ALL feel proud of your […]

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11-month-old baby Neve’s ovarian tumour was bigger than a softball.

11-month-old baby Neve’s ovarian tumour was bigger than a softball.  Imagine being diagnosed with ovarian cancer as a baby. Unfortunately, this was the confronting reality Neve and her parents Jo and Zoe found themselves in on August 1, 2014. Aged just 11 months old, Neve was diagnosed with Juvenile Granulosa Cell Tumour (jGCT) – a recurrent, incurable ovarian cancer that has no effective treatments available post-surgery. Most people associate ovarian cancer as a disease affecting adult women. Few people know that ovarian cancer can be diagnosed at any age and affects females of all ages. So little is known about […]

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11-month-old baby Neve’s ovarian tumour was bigger than a softball.

11-month-old baby Neve’s ovarian tumour was bigger than a softball.  Imagine being diagnosed with ovarian cancer as a baby. Unfortunately, this was the confronting reality Neve and her parents Jo and Zoe found themselves in on August 1, 2014. Aged just 11 months old, Neve was diagnosed with Juvenile Granulosa Cell Tumour (jGCT) – a recurrent, incurable ovarian cancer that has no effective treatments available post-surgery. Most people associate ovarian cancer as a disease affecting adult women. Few people know that ovarian cancer can be diagnosed at any age and affects females of all ages. So little is known about […]

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Consumers working with researchers for a rare ovarian cancer.

It has been an exciting start to the second half of the year for a rare ovarian cancer called Granulosa Cell Tumour (GCT). Previously GCT has received very little research to be able to have standard protocols for treatment. Consumers from around the world are helping researchers at the Hudson Institute of Medical Research in Melbourne Australia to gain more insight into this rare disease with collected data information from the GCT Survivor Sisters and tumour tissue samples from patients. Kim Eroh the founder of the Facebook group GCT Survivor Sisters in 2012 created the group to be able to […]

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